Alagille Syndrome Alliance

10500 SW Starr Dr
Tualatin OR  97062

Phone: (503) 885-0455

Alagille Syndrome Alliance

The Alagille Syndrome Alliance is an international support and advocacy network for people with ALGS and their families. Founded in 1993, the Alliance has grown to include several hundred families located all over the world.

The Alliance is run by a volunteer Board of Directors composed of dedicated, committed individuals whose lives have been touched by ALGS: young people and adults with this disorder, and siblings, parents, grandparents, aunts, and uncles of children and adults dealing with the challenges of ALGS as they do their best to live a “normal” life with chronic illness.

We endeavor to provide a forum for ALGS families to meet one another on a regular basis for mutual support and sharing of current information on ALGS. We strive to include as many families as possible in Alliance programs and services so that all may benefit. We are dedicated to increasing public awareness of ALGS. We gather and distribute information about ALGS, research studies, and helpful services to families, friends, and health care providers. We recognize the wealth of knowledge that is gained through research and encourage ALGS families to participate in studies so that they may contribute to the growing information base about this disease.

Most importantly, we exist to support ALGS families and celebrate the ALGS Community. We are here to answer questions, provide sound information, and lend a sympathetic ear as families enter the world of ALGS and the challenges it presents throughout one’s life.

The purpose of the Alliance is to be the main networking resource and source of information for people with ALGS, their families, friends, and health care providers. The Alliance is also dedicated to increasing public awareness of ALGS and supporting rese

Show Map Website

Business Information


Founded: 1993

Categories: Medical & Health, Non-Profit Organization

Hours

Mon: 9:00 am - 6:00 pm
Tue: 9:00 am - 6:00 pm
Wed: 9:00 am - 6:00 pm
Thu: 9:00 am - 6:00 pm
Fri: 9:00 am - 6:00 pm



Report a Problem

Events

8th International Symposium & Scientific Meeting on ALGS

8th International Symposium & Scientific Meeting on ALGS
03:00 pm - 06/21/2019

At Alagille Syndrome Alliance

The largest gathering of ALGS families and patients in the world. We spend the weekend sharing stories, offering/receiving support and forming lifelong friendships....

Past Events

Annual Southeastern PA ALGS Picnic

Annual Southeastern PA ALGS Picnic
01:30 pm - 07/29/2017

At Alagille Syndrome Alliance

Join ALGS families and ALGS specialists from the Children's Hospital of Philadelphia for an afternoon of fun, food and friendly conversation! For more information,...

Portland Tweets

Portland Tech Events
Portland Tech Events
Don't miss the #Portland Women's Beginning Bouldering meetup this coming Thursday: https://t.co/o3GUwd7Tqt

S.C.
S.C.
RT @LRBitisnot: #Portland? #HousingFirst "How New Orleans Reduced Its Homeless Population By 90 Percent" https://t.co/fx7N2X101O via @her…

kgs
kgs
RT @BonnieSilkman: We found signs in St. Johns about violent attacks against trans & queer Portlanders. Businesses here say they’re standin…

TMJ- PDX Constr Jobs
TMJ- PDX Constr Jobs
Can you recommend anyone for this job in #Portland, OR? https://t.co/HzwIBjRD4S #Construction

TMJ-PDX Finance Jobs
TMJ-PDX Finance Jobs
Providence Health & Services is looking for teammates like you. See our latest #financial job openings, including "… https://t.co/n5yLBPh8FW

TMJ-PDX Jobs
TMJ-PDX Jobs
Don't be shy. Score a job like "Veterinary Internship ECC" at DoveLewis Veterinary Emergency and Specialty Hosp by… https://t.co/4nRbIVMfSc

GeoRittenmyer
GeoRittenmyer
Standard Portland tourist photo

TMJ-PDX Jobs
TMJ-PDX Jobs
Want to land a job like "LPN Part-Time/On-Call (Licensed Practical Nurse) - Portland, OR" at Portland Health and Re… https://t.co/cZr24AfVkV

TTN Portland
TTN Portland
Closed due to road construction in #Portland on SW Beef Bend Rd WB between SW Myrtle Ave and SW Roy Rogers Rd #PDXtraffic

BOWSER
BOWSER
He was dying to take a #brotie picture with me. #nafmenw #portland @ Glowing Greens https://t.co/Q04nuoQ6bj